World Hemophilia Day


April 17th is an incredibly important day to me. Today our worldwide community comes together to shine the spotlight on hemophilia. Hemophilia is a tough disorder to live with, not only in the developing world but everywhere. We are lucky enough to have factor here in the US and in other developed nations but it is still hard. We have inhibitors to deal with and still the pain of bleeds. The psychological toll is quite high as well. We deal with people babying us, telling us what we can't instead of encouraging us to try. In the developing world the struggle is much more difficult. Many don't even know what is wrong with them and are in constant agony. They have little to no hope to get factor that will alleviate pain.

I am very fortunate to live the life I do with hemophilia and raising awareness for hemophilia worldwide is exactly why I do it. The disparity in care is immense world wide and I hope I can help to change that. Through my climbs I hope that people are inspired to try for more. Not everyone can literally climb mountains (or even wants too) but everyone has a dream. Maybe it's to become a world famous painter or in the developing world just to have access to factor or stay in school. It's possible!!! Shoot for your goals and surround yourself with people that believe in you because it's totally possible!

Today like most days I also think about those that inspire me with hemophilia. They are everywhere! I wouldn't dare try and list everyone here because that list would be long and I would hate to leave anyone out by accident. They live here in the states and around the entire globe. While spreading awareness today for hemophilia and educating others let's make our community example of that kind of support. Today, with everyone supporting each other, more people will know about hemophilia and our struggles and successes. People will see how powerful a small community can be and hopefully that will inspire them to do more. Tonight the Colorado Chapter of the National Hemophilia Foundation is lighting up Coors Field in the middle of downtown Denver for World Hemophilia Day. Thousands and thousands of people will see this and hear the word hemophilia for the first time and that is amazing! I'm so proud to be apart of this community! Let's go out and change the world for the better!

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